Last Tuesday I made it to the back door, saw the Post-it, said "eight," opened the door, stood there for eleven seconds, and closed it.
Kona was already at my feet. She'd done the whole sequence β the relocation, the lean, the face. She was ready. I was not.
The rain was sideways. The wind was pulling at the door. The bay sounded angry instead of rhythmic. And my body β which had been running a flare since Monday morning β was telling me in language I've learned not to argue with that going outside would make things worse, not better.
I sat down on the kitchen floor. Kona lay down next to me. We stayed there for a while. I didn't go outside.
I'm writing this article because every other article in this series makes it sound like I have a system that works. And I do. Most of the time. But "most of the time" isn't all of the time, and the nights when it doesn't work are the nights that matter most, because those are the nights that will make someone reading this blog think they're failing at something I made look easy.
You're not failing. This is what it actually looks like.
The Nights It Doesn't Work
Out of 147 sessions in Ken's spreadsheet, about 23 were what I'd call failures. Not "the pain only dropped one point" β those are normal, those are the noise in the data. I mean the sessions where I went outside and came back the same or worse.
And there are another 30 or so nights where I didn't go outside at all. Nights that don't appear in the spreadsheet because nothing happened. They're the absences in the data, and they tell a story the data can't.
Here's what the failure nights have in common:
- Wind above 15 mph. Kills the soundscape. Activates instead of calms. My nervous system reads high wind as threat.
- Pain above 8 before going out. The deck works best when I start between 4 and 7. Above 8, the cold hurts more than it helps. The sensory input becomes another signal to process, and my system is already overloaded.
- Multi-day flares (day 3+). The first night of a flare, the deck still helps. By day three, my body is in a different mode β central sensitization is fully engaged, and the same stimuli that help on night one become irritants by night three.
- Emotional overwhelm. Anxiety, grief, the kind of frustration that comes from the fourth doctor saying "your labs look normal." On those nights, lying in the dark with reduced sensory input doesn't calm me β it amplifies the thoughts.
- Sometimes, no reason at all. That's the honest one. Some nights, I do everything the same, and it just doesn't take. Same temperature. Same tide. Same stars. Same Kona. Different result. Because chronic pain isn't a machine, and the inputs don't always produce the same outputs.
Ken's Research Notes
The data confirms what Toni is describing. When I run the numbers on failed sessions, wind speed is the strongest predictor β sessions with wind above 12 mph show an average pain delta of β0.4, compared to β2.3 for calm nights. But the second predictor isn't any environmental variable. It's baseline pain. Sessions starting at 8+ show an average delta of β0.6. The intervention has a ceiling β or more precisely, a floor. Below a certain baseline, the mechanisms we've written about (parasympathetic activation, melatonin, vagal tone) operate. Above it, the system is too saturated to respond.
And then there's the 15% of failed sessions that I can't explain with any variable in the dataset. Same conditions as successful sessions. Different outcome. I've stared at these rows for hours. The honest answer is that pain is more complex than 18 variables can capture. The spreadsheet is useful. It is not sufficient.
The Boom-Bust Problem
I need to talk about this because I was doing it and I didn't know it had a name.
The boom-bust cycle is the most common activity pattern in chronic pain: on good days, you do too much. The overdoing triggers a flare. The flare forces you to stop. You rest until you feel better, then you do too much again. Each cycle ratchets your baseline a little lower.1
I was doing this with star bathing. A good session β pain drops three points, I feel amazing, I sleep well β and the next day I'd overdo it. More activity. More time at the desk. More standing in the kitchen cooking an actual meal instead of cereal. By evening, the flare was back, and I'd go outside expecting the deck to fix what I'd broken during the day.
The deck can't fix that. The deck isn't a reset button. It's one piece of a pain management strategy, and when I treated it as a license to ignore pacing, I turned my best tool into part of the problem.
A 2019 survey of activity pacing across healthcare professionals found that pacing β breaking tasks into smaller steps, maintaining consistent activity levels, taking planned rest breaks β reduced boom-bust cycling and improved psychological function. But it also found something harder to hear: there's no consensus on exactly how to pace, and the research base is still limited.1
What pacing looks like for me now: a good deck session doesn't earn me a bigger day. A good deck session earns me the same day, done with less pain. That reframing took months. I'm still working on it.
What I Actually Do When I Can't Go Outside
This is the section I kept putting off writing. Because "what I do instead" sounds like it should be a list of clever alternatives, and the truth is less organized than that.
The Kitchen Floor
I'm not being dramatic. The kitchen tile is cold. On high-pain nights when the deck isn't an option, I end up on the kitchen floor because my body wants cold on the parts that hurt β lower back, hips, shoulders β and the tile provides that without the wind and rain and effort of going outside.
Kona lies next to me. Ken sits against the cabinets with his laptop or a book. It's not glamorous. There's no bay soundtrack. The refrigerator hums. The clock ticks. But the cold tile does something β not as much as the deck, but something β and the dog and the partner make it survivable.
The Open Window
On nights when I can't go outside but the weather isn't terrible, I open the bedroom window and lie in bed with the cold air coming in and the bay sound entering the room. It's a degraded version of the full stack. The air isn't as cold (the room buffers it). The sound is filtered through glass and walls. The darkness isn't complete β there's the alarm clock, the hallway light under the door.
But it works at about 40% of full deck sessions. I know this because Ken tracks it. Open-window nights show a pain delta of about β0.8, versus β1.8 for deck sessions. It's not nothing. On a night when nothing is the alternative, 40% is worth it.
The Bath
Hot, not cold. This is the opposite of star bathing's mechanism and I don't care. On the worst nights, the bath isn't about parasympathetic activation or vagal tone or melatonin. It's about being warm and weightless and alone in a small quiet room with the door locked.
I don't track bath nights. They're not data. They're survival.
The Thing I Don't Want to Write
Sometimes none of it works. Not the deck. Not the floor. Not the window. Not the bath. Not the medication. Not Kona. Not Ken.
Those nights, I just wait. I wait for the pain to move from unbearable to merely terrible. I wait for the exhaustion to overpower the pain enough that I can sleep. I wait for 6 AM, because for some reason the worst pain of a flare always loosens its grip around dawn, like it has a shift schedule.
I wait, and Kona stays, and eventually it passes. I don't have a hack for those nights. I don't have a technique. I have a dog and a partner and a blanket and the knowledge that I have survived every one of these before and that's the only evidence I need that I'll survive this one.
If that's where you are right now β waiting for dawn β I see you. There is no trick. There is just getting through.
Acceptance Isn't Giving Up
I fought that word for a year. Acceptance. Every time a therapist or a blog or a well-meaning friend said "you need to accept your condition," I heard "stop trying to get better." I heard "give up." I heard "this is your life now, so just be okay with it."
That's not what acceptance means in the research, and it took me too long to learn the difference.
Acceptance and Commitment Therapy (ACT) has been tested specifically with fibromyalgia. A 2024 meta-analysis found that ACT improved pain acceptance, reduced pain interference, decreased depression and anxiety, and lessened catastrophizing β and most of these improvements held at follow-up.2
The mechanism isn't acceptance of the pain. It's psychological flexibility β the ability to have the thought "this pain is unbearable" and still do the thing you care about. A 2015 study tested whether it was the flexibility or the reduction in catastrophizing that drove improvement in ACT for chronic pain. Answer: both mattered, but psychological flexibility was the direct causal mechanism. Its effects were twice as large and occurred earlier in treatment.3
Star bathing works partly because it's an act of psychological flexibility. I'm in pain. I'm going outside anyway. I'm choosing an action aligned with what I value β being in nature, being in my body, being present β and I'm doing it while the pain is happening, not waiting for the pain to stop first.
And on the nights it doesn't work? The flexibility is in letting go. Closing the door. Sitting on the kitchen floor. Accepting that tonight, the deck isn't the answer, and that doesn't mean the deck was never the answer.
Ken's Research Notes
There's a beautiful finding in the ACT literature that I want Toni to hear, even though she'll probably roll her eyes. A 2024 group ACT study for fibromyalgia found that improvements in vitality, pain, and anxiety weren't biggest right after treatment. They were biggest at six-month follow-up. The researchers called it "incubation" β the effects of acceptance-based approaches got stronger over time.4
Toni has been doing this for six months. She's better at the kitchen floor nights than she was at the beginning. Not because the floor got more comfortable, but because she stopped fighting the fact that she's on it. That's incubation. That's the skill getting stronger even when the pain doesn't get weaker.
Self-Compassion Is Not Self-Pity
This is the other word I fought. Self-compassion sounded soft. Indulgent. Like something for people who hadn't tried hard enough. I'm a developer. I debug things. I don't sit around being compassionate at myself.
Then Ken showed me a brain imaging study, and I stopped arguing.
Researchers gave chronic low back pain patients eight hours of self-compassion training β not months, not years, eight contact hours β and then scanned their brains during pain. The right temporo-parietal junction, which processes the salience (importance) of pain, was less active after training. The dorsolateral prefrontal cortex, which regulates emotion, was more active. Self-compassion literally changed how their brains processed pain signals.5
A 2025 validation study of self-compassion in chronic pain found that self-compassion scores predicted 32% of the variance in depression, 29% of pain acceptance, 27% of psychosocial functioning, and 23% of pain-related anxiety β even after controlling for pain intensity, duration, age, and gender. Self-compassion was a stronger predictor of functioning than the pain itself.6
What self-compassion looks like at 3 AM on the kitchen floor: instead of "why can't I just go outside like I'm supposed to," it's "this is a hard night, and I'm doing what I can." Instead of "the deck didn't work, I'm failing," it's "the deck isn't available tonight, and that's okay." Instead of debugging my own pain response like it's broken code, letting the pain exist without making it mean something about my worth.
That shift β from self-criticism to self-compassion β doesn't reduce the pain. It reduces what the pain costs.
The Flare Management Protocol (Such As It Is)
A 2022 review of fibromyalgia flare management laid out what the evidence supports. I'm including it because on flare nights, I can't think clearly enough to remember this stuff, so having it written down β by me, in my own words, on my own blog β means I can find it when I need it.7
- Don't change medications impulsively. Flares feel permanent. They're not. The urge to add a pill or double a dose is strongest exactly when decision-making is worst. Unless your doctor has given you a specific flare protocol, hold steady.
- Modify activity, don't eliminate it. Complete rest makes flares worse, not better. But normal activity is too much. The middle ground: move for 5 minutes, rest for 20. Repeat. Something small is physiologically better than nothing.
- Cold where it helps, heat where it helps. These are different for different people and different body parts. For me: cold on lower back and hips, heat on shoulders and neck. Your pattern may be opposite. Learn it before the flare, because during the flare, you can't experiment.
- Social support, even minimal. "Ken, I'm on the floor" is a complete sentence. He doesn't need to fix it. He just needs to know. Isolation during flares is the thing that turns pain into suffering.
- Let the flare have its time. It's temporary. It feels permanent. It's not. Average flare duration in the literature is 1-5 days. Mine average about 3. Knowing the number doesn't make it shorter, but it makes the middle less terrifying.
CEO Incident Report: Rain Night
Date: Last Tuesday
Incident: The human called Toni opened the back door and then closed it again. She sat on the kitchen floor. The dog went to the floor. The human called Ken went to the floor. I remained at my post on the counter because the floor was wet and dignity is non-negotiable.
The humans did not go outside. The deck was unoccupied. The rain continued. The bay made angry sounds. None of this was acceptable, but none of it was within my operational control.
After approximately forty minutes, the floor session concluded and the humans moved to the couch. I relocated to the arm of the couch. The dog took the other side. Toni was between us. This configuration was held until sleep.
I do not understand the floor protocol. I do not understand why the deck was abandoned. I do not understand most of what the humans do. But I understand that on certain nights, my job is to be on the arm of the couch and not leave, and I have never failed at this job.
β Samba, CEO
Couch Arm Operations Division
(Incident report filed. No further action recommended. Floor remains under review.)
What the Bad Nights Teach
I've written eight articles about what works. This one is about what doesn't. And the thing I keep realizing is that the bad nights are why the good nights matter as much as they do.
If star bathing worked every time, it would be a treatment. It's not. It's a practice β something I do that helps more often than it doesn't, in a condition that offers very few things with that track record. The nights it doesn't work are part of the practice, because they're the nights that test whether I'll go back out the next night.
I always go back. Not because I'm brave. Because I remember how the last good session felt, and I want that again, and wanting it is enough.
The deck is still there. The bay is still there. The stars come back. Kona is always at the door before I am. The only thing that changes between a bad night and a good night is which one I'm standing in.
Sources
- Antcliff D, et al. (2019). "Survey of activity pacing across healthcare professionals." Disability and Rehabilitation. Comprehensive survey on pacing approaches, boom-bust cycling, and benefits of consistent activity management for chronic pain. https://pmc.ncbi.nlm.nih.gov/articles/PMC6973284/ β©
- Eastwood F, Godfrey E. (2024). "The efficacy, acceptability and safety of acceptance and commitment therapy for fibromyalgia β a systematic review and meta-analysis." British Journal of Pain. ACT improved pain acceptance, reduced catastrophizing, and decreased depression and anxiety, with most improvements maintained at follow-up. https://pmc.ncbi.nlm.nih.gov/articles/PMC11092929/ β©
- Wicksell RK, et al. (2015). "Psychological flexibility and catastrophizing as associated change mechanisms during online Acceptance & Commitment Therapy for chronic pain." Behaviour Research and Therapy. N=238; psychological flexibility was the direct causal mechanism, with effects twice as large and occurring earlier than changes in catastrophizing. https://pubmed.ncbi.nlm.nih.gov/26409158/ β©
- MartΓn-Brufau R, et al. (2024). "Group Acceptance and Commitment Therapy (ACT) for fibromyalgia patients." ClΓnica y Salud. 57 women with FM; ACT group showed significant improvements in health perception, mindfulness, and catastrophizing, with "incubation" β effects growing stronger at 6-month follow-up. https://journals.copmadrid.org/clysa/art/clysa2024a1 β©
- Torrijos-Zarcero M, et al. (2020). "Brief self-compassion training alters neural responses to evoked pain for chronic low back pain: a pilot study." Frontiers in Psychiatry. 8 contact hours of self-compassion training reduced TPJ activation (pain salience) and increased dlPFC activation (emotion regulation). Changes associated with reduced clinical pain intensity. https://pmc.ncbi.nlm.nih.gov/articles/PMC7593799/ β©
- Gillett JL, et al. (2025). "Self-compassion in chronic pain: validating the self-compassion scale short-form and exploring initial relationships with pain outcomes." British Journal of Pain. Self-compassion predicted 32% of variance in depression, 29% in pain acceptance, 27% in psychosocial functioning β even after controlling for pain intensity and duration. https://journals.sagepub.com/doi/10.1177/20494637241312070 β©
- Cabo-Meseguer A, et al. (2022). "Assessment and management of fibromyalgia flares." ReumatologΓa ClΓnica. Evidence-based flare management: education, activity modification, relaxation techniques, social support strengthening. Emphasizes flares are temporary and part of the clinical process. https://pmc.ncbi.nlm.nih.gov/articles/PMC9494787/ β©
- Sturgeon JA, Zautra AJ. (2010). "Psychological resilience, pain catastrophizing, and positive emotions." Journal of Pain. Catastrophizing narrows cognitive focus to threat-related cues, reducing ability to identify resources. Psychological flexibility broadens focus and fosters resilient responses. https://pmc.ncbi.nlm.nih.gov/articles/PMC9473682/ β©